Cancer Survivors On Line

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Surgery

Diagnosis Cancer: Your Guide Through the First Few Months, Wendy Schlessel Harpham, (New York: W. W. Norton, 1992)

Everyone’s Guide to Cancer Therapy, 2nd edition, Dollinger, Malin, Ernest H. Rosenbaum and Greg Cable (Andrews & McMeel, Kansas City 1994)

The People’s Cancer Guide Book, Robert E. Aigotti, M.D. (Belletrist Publishing 1995)

Mastectomy: A Treatment for Breast Cancer (87-658, August 1987), National Cancer Institute 1-800-4-CANCER

The Surgical Management of Primary Breast Cancer (3493, 1991) American Cancer Society 1-800-ACS-2345 or local chapter


Dr. Susan Love’s Breast Book, 2nd Ed., Susan M. Love, M.D. with Karen Lindsey, (Addison Wesley Publishing Company, 1995)

Standards for Breast-Conservation Treatment (3405,1992) American Cancer Society 1-800-ACS-2345 or local chapter

David’s Story; A Book About Surgery, Ben Brink, (1996, Lerner)

Protocols in General Surgery; Surgical Robotics, Telepresence, and Virtual Reality, Richard A. Satava, Jonathan M. Sackier, (1997, John Wiley & Sons)

Atlas of General Surgery, D.C. Carter, R.C. Russell, H.A. Pitt, (1996 , Chapman & Hall)

Surgery Book; An Illustrated Guide to 73 of the Most Common Operations, Robert M. Youngson, (1993, ST. Martins PR)

Long-Term Survival After Pancreatic Cancer Surgery Rises (1995), Johns Hopkins Study, Charles Yeo, M.D. et al. (410) 955-1534

Read the list of questions to ask
before agreeing to surgery

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Radiation

During Treatment (94-2227, 1993) National Cancer Institute 1-800-4-CANCER

Radiation Therapy: A Treatment for Early Stage Breast Cancer (87-659, September 1987) National CancRadiation Therapy and You: A Guide to Self-Helper Institute 1-800-4-CANCER

The Role of Radiation Therapy in the Management of Primary Breast Cancer (3492, 1991) American Cancer Society 1-800-ACS-2345 or local chapter

Read the list of questions to ask
about radiation therapy

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Chemotherapy

Chemotherapy and You: A Guide to Self-Help During Treatment (94-1136), 1993) National Cancer Institute 1-800-4-CANCER

Chemotherapy: Your Weapon Against Cancer (1991 edition) Chemotherapy Foundation, New York

Coping with the Side Effects of Chemotherapy, (1992) Wyeth-Ayerst booklet (800) 395-9938

Coping with Chemotherapy, Nancy Bruning (New York:Ballantine Books, 1993)

Understanding Chemotherapy, A Guide to Treatment of Leukemia, Lymphoma, and Multiple Myeloma for Patients and their Families, (P-036 15M 6/96) Leukemia Society of America, 600 Third Avenue, New York, NY 10016 1-800-955-4LSA or local chapter

Bone Marrow Transplantation and Peripheral Blood Stem Cell Transplantation (P040 8/95 50M) Leukemia Society of America, 600 Third Avenue, New York, NY 10016 1-800-955-4LSA or local chapter

The Immune System — How It Works, (96-3229) National Cancer Institute 1-800-4-CANCER

Read the list of questions to ask
about chemotherapy

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Medicines

Physicians’ Desk Reference, 50th edition, 1996, Medical Economics Company,Montvale, NJ 07645-1742

PDR for NonPrescription Drugs, 1996, Medical Economics Company,Montvale, NJ 07645-1742

PDR Generic, 1996 Medical Economics Company,Montvale, NJ 07645-1742

Medical Dictionary, 1995 Medical Economics Company,Montvale, NJ 07645-1742

The Merck Manual of Medical Information - Home Edition, 1998 MERCK 1-800-490-1679

Guide to Drug Interactions, 1996 Medical Economics Company,Montvale, NJ 07645-1742

Cancer and Natural Medicine: A Textbook of Basic Science and Clinical Research, John Boik (Oregon Medical Press: North Princeton, Minnesota 1996)

Dr. Rosenfeld’s Guide to Alternative Medicine, Isadore Rosenfeld, M.D. (Random House, New York, NY 1997)

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Talking with Family and Friends

Man to Man - When the Woman You Love Has Breast Cancer, Andy Murcia and Bob Stewart, (New York:St. Martin’s Press, 1990)

Listen with Your Heart, Talking With the Cancer Patient, (96-100M-No 4557) American Cancer Society 1-800-ACS-2345 or local chapter

When Your Friend Gets Cancer, Amy Harwell and K. Tomasik, (Wheaton, IL: Harold Shaw Publishers, 1987)

Taking Time: Support for the People with Cancer and the People Who Care about Them (92-2059), June 1990) National Cancer Institute 1-800-4-CANCER

Afraid to Ask, A Book for Families to Share About Cancer, Judylaine Fine, (New York City: Lothrop, Lee and Shepard Books, 1986)

Share the Care. A guide to getting the help you need.
Cappy Capossela and Sheila Warnock 1995
Fireside,  by Simon & Schuster, NY

National Coalition for Cancer Survivorship. Network of support groups emphasizing survival and support for patients and their families. 323 Eighth Street SW, Albuquerque, NM 87102 (505) 764-9956

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Talking with Children

Moms Don’t Get Sick, Pat Brack and Ben Brack (Aberdeen, SD: Melius Publishing, 1990)

My Mommy Has Cancer, Carolyn Stearns Parkinson, (Rochester, NY: Solace Publishing, 1992)

Helping Children Cope When a Parent Has Cancer, American Cancer Society 1-800-ACS-2345 or local chapter

Afraid to Ask, A Book for Families to Share About Cancer, Judylaine Fine, (New York City: Lothrop, Lee and Shepard Books, 1986)

Helping Children Cope With The Loss Of A Loved One
(a guide for grownups)

William C Kroen, PHD, LMHC

Peter Alsop’s Uplifting Children’s Music, Moose School Productions. Special audio tape with songs about kids in hospitals. PO Box 960, Topanga, CA 90290, (800) 676-5480

Fighting Chance, Harry Connelly (1998) Journal of children with cancer focusing on giving hope.

All cancer patients who read book said they wish they had read it when they first began treatment. A good resource for children who have cancer and their families.

Someone I Love Has Cancer, Catherine McCormick Donald (Catherine McCormich Donald Foundation), P.O. Box 51, Fredmir, WI 53021 FAX 414-692-9585

Cancer, A True Book, Dennis B. Fradin (Chicago: Children’s Press 1988)

Once Upon a Hopeful Night, Rita Sacks Yaffe

When a Parent is Very Sick, Eda LeShan, (Boston and New York: The Atlantic Monthly Press, 1986)

What About Me?, Linda Strauss, (Cincinnati OH, Cancer Family Care, 1986) 513-731-3346

My Journey of Hope, A Child’s Guidebook to Living With Cancer, Sarah Jean Kovar, Barbara J. Hranilovich

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Talking with the Medical Community

Talking with Your Doctor, (4638-PS,1987) American Cancer Society 1-800-ACS-2345 or local chapter

Teamwork: The Cancer Patients’ Guide to Talking with Your Doctor, National Coalition for Cancer Survivorship, Silver Springs, MD (301) 650-8868

50 Essential Things To Do When the Doctor Says It’s Cancer, Greg Anderson (Plume 1993)

Confronting Cancer, Michael M. Sherry, M.D. (Insight Books - Plenum Publishing Company 1990) 1-800-221-9369

Medical Choices, Medical Chances: How Patients, Families and Physicians can Cope with Uncertainty, Harold J. Bursztajin, Richard I. Feinbloom, et al (Routledge 1990)

Your Medical Rights, Charles B. Inlander and Eugene I. Pavalon (Allentown, PA: People’s Medical Society 1994)

What Cancer Survivors Need to Know About Health Insurance (1993) National Coalition for Cancer Surivorship. Single copies free. 
(301) 650-8868

Communication Between Patients with Breast Cancer and Health Care Providers. Determinants and Implications (1993) C. Lerman; et al (94006076 NLM) MEDLINE RECORD, MDX Health Digest, by Medical Data Exchange. Access by computer with modem at http://www.thriveonline.com (search for communication).

Mental Medicine - Prescriptions for improving Communications (1994) MDX Health Digest by Medical Data Exchange

The Intelligent Patient’s Guide to the Doctor-Patient Relationship, Learning to Talk So Your Doctor Will Listen, Barbara M. Korsch, MD, Caroline Harding (1997, Oxford)

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Talking with Employers and Others

The American with Disabilities Act: Protection for Cancer Patients Against Employment Discrimination (4585, 1993) Defines the ADA law by describing employment rights of the cancer patient. American Cancer Society 1-800-ACS-2345 or local chapter

Cancer and Employment Discrimination (6857.00, 1995) American Cancer Society 1-800-ACS-2345 or local chapter

Working It Out: Your Employment Rights as a Cancer Survivor, The National Coalition for Cancer Survivorship. (301-650-8868)

What Cancer Survivors Need to Know About Health Insurance (1993) National Coalition for Cancer Survivorship, 1010 Wayne Avenue, 5th Floor, Silver Springs, MD 20910. Single copies free. (301) 650-8868

What You Should Know About Health Insurance
(731, July 1987)
What You Should Know About Disability Insurance (733, Oct 1987)
Health Insurance Association of America, 1025 Connecticut Avenue NW, Washington DC 20004-3998 (202) 334-7780

Your Protection Under Law, Facing Forward: A Guide for Cancer Survivors (93-2424) National Institute of Health 1-800-4-CANCER

Comments on the Americans with Disabilities Act (ADA), Authors: OncoLink Editorial Board, University of Pennsylvania Cancer Center (1995). Access by computer with modem http://www.oncolink.com/psychosocial/ada/html

ADA, FMLA, and Leave Policies, A Comparison of Significant Provisions, 1997, Lawrence P. Postal. Access by computer with modem http://www.claimline.com/articles/lpa8.html#top.

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Hospice

Hospice and Palliative Care: Concepts and Practice, Denice C. Sheehan (Editor), Walter, B. Forman (Editor); Textbook Binding

At Home With Terminal Illness: A Family Guide to Hospice in the Home, Michael Appleton, et al, 1995

Caregiving: Hospice-Proven Techniques for Healing Body and Soul, Douglas C. Smith, Doug Smith, 1997

The Handbook of Hospice Care, Robert W. Buckingham, et al, 1996

Hospice: A Photographic Inquiry, Jim Goldberg (Editor, et al, 1996

Hospice and Palliative Care Handbook: Quality, Compliance, and Reimbursement, T.M. Marrelli, Fred F. Ferri, 1998

Hospice Care for Children, Ann Armstrong-Dailey (Editor) et al, 1993

The Hospice Choice: In Pursuit of a Peaceful Death, Marcia Lattanzi-Licht, et al, 1998

Hospice Experiment (Johns Hopkins Series in Contemporary Medicine and Public Health), Vincent Mor, et al, 1988

The Hospice Movement: A Better Way of Caring for the Dying, Sandol Stoddard, William M. Lamers, 1992

I'm Here to Help: A Guide for Caregivers, Hospice Workers, and  Volunteers, M. Catherine Ray, 1997

Let Someone Hold You: The Journey of a Hospice Priest, Paul F. Morrissey, Stephen Levine, 1994

Love Is the Link: A Hospice Doctor Shares Her Experience of Near-Death and Dying, Pamela M. Kircher, et al, 1995

Soon: Tales from Hospice, A. G. Mojtabai, 1998

All Kinds of Love: Experiencing Hospice (Death, Value, and Meaning Series), Carolyn Jaffe, Carol H. Ehrlich, 1997

Friend of the Family: A Hospice Volunteer's Experience, Sally E. Lebowitz, 1989

Home Hospice: A Caregiver's Guide, Charlene, MD Kaiser, 1990

Hospice and Palliative Care: Questions and Answers, Virginia F. Sendor, Patrice M. O'Connor, 1997

Hospice Operating Manual, National Hospice Organization Staff, 1998

Hospital-Based Palliative Care Teams: The Hospital Hospice Interface, Jo Hockley, R. J. Dunlop (Editor), 1998

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